good times

Today my best friend Christine went back home to Winnipeg. We had a good time,even though alot of it was spent at the docs office. We are so glad she came and we had ALOT of laughs.We miss her so much already,but she will visit again,hopefully next winter. I posted pics earlier today. Well Im off to bed,neurosurgery appt tomorrow afternoon.

Visit from bf Christine-pics

home and abdominal pain

Maddy has been home since Friday afternoon. She still was having headaches and poor appetite,but her doc hoped she would do better at home.She didn't so I put her on diamox yesterday morning and she hasnt complained of headaches and appetite came back and she ate and ate and ate. She also has been complaining of stomach pain for atleast 7-8weeks if not more. I thought at first it was due to antibiotics then we thought she was just nauseous due to all the meds but last week she told me it hurts her and is complaining more each day. She complains many times a day.She is not constipated and has no fever. I let neurosurgery know and her docs said she has never seen a case of a shunt causing abdominal pain and to take her to the pediatrician. I took her today but saw a new doc as hers wasnt there and she order labs,urinalysis,abdominal xray and ultrasound. Well so far all has come back normal,so I called neurosurgery back and asked them now what the pain is still there and she is also doing well on diamox,so now what. They told me to stop the diamox by Wednesday and hopefully she will just get better. I told them that Maddy says her tummy feels better when she takes a deep breath,she complains every 5-15 minutes and today has been crying when shes hurting. They told me its not her shunt or the tubing and to take her to the ER is she gets that bad. i called her neurosurgeons office this morning and told them enough is enough I want all the programmable stuff out and the old shunt system in.I will keep you all posted.

HAPPY EASTER!

Yesterday I decided to try and see how Maddy would do on Diamox as she wasnt any better once we left the hospital. She did great. She ate and ate and ate. She drank well and didnt complain much at all of a headache. The only pain she kept saying she had was stomach pain,so I called neurosurgery a bit ago and told them. So I am waiting for them to call back and tell me whats next

going home after 28 days

We went home today from the hospital,well we are staying with my parents. They wanted me to take her home and see how she does for a few days. So far her appetite is about the same. Dr. Woodward told us she wants to try and see if she can adjust to the low pressure headaches,but also said we can bring her back if she gets worse.She is think of taking out the programmable shunt and putting in the old non-programmable type. So I am glad we are home in the meantime so we can enjoy easter and have some fun.

pic #1 is Maddy and Dr. Cartwright( she put in mediport)
pic #2 is Maddy and one of her favorite nurses Nicole
pic #3 is Maddy and her neurosurgeon Dr. Woodward

we are going home tomorow

We are supposed to be going home tomorrow. The migral didn't help Maddy at all,so the neurologist is gonna put her on Topamax instead of Lamictal as it can help with headaches too. Dr. Woodward is certain the shunt is ok,although I am not convinced. I am hoping she does better at home. If not we can bring her back and since she has the port now its so much easier,no more pokes.

My best friend arrived today from Winnipeg so I am soo excited and it will be nice to spend time together and not be here.

Joe called and asked how Maddy was doing and I told him. I said we are going home tomorrow,but I we will be stayng with my parents and he acted all surprised. I told him well you want the divorce and you cant stand me so why be around. He didnt say anything and said see you later. Well Im gonna go for now.